For advice on severe allergies, visit the Anaphylaxis Campaign website www.anaphylaxis.org.uk/living-with-anaphylaxis/young-people or drop us a line info@anaphylaxis.org.uk / 01252 542029 /@ACOutthere/@Anaphylaxiscoms

Friday, 21 April 2017

Charlotte Whitehead


I am 21 years old and have had severe allergies to milk, egg and nuts my whole life.  Of course this has not made life easy, but often I have found the social stigma surrounding allergies more irritating than avoiding the food itself.

Upon hearing about my allergies, people typically respond with “oh god your life must be so hard” or “but I love cheese!” or my favourite line, “I would literally kill myself if I couldn’t eat chocolate”. I know they don’t mean to be hurtful, but it really grates. Would you adopt the same approach to someone who was wheelchair bound? We would never dream of saying “I can’t believe you don’t know how good it is to walk!”

People, understandably, don’t realise that I have a very varied diet. In fact, I am sure my friends could account for the fact that I am pretty much always eating. Food is one of my main passions. So it has always been frustrating that people seem to assume that I live on a diet of dry cereal and bread.

I can also be self-conscious of people thinking I am rude when it comes to being careful about cross-contamination. Sorry, person I have just met, but I can’t share my food with you because you have just had a packet of Wotsits! It feels awkward. Again, I am fearful of coming across annoying when a friend makes me a cup of tea and I have to pester them to make sure they don’t put a milky spoon in my drink.

However I have tried to turn these gripes into something positive. I understand that having allergies is something people find interesting. When appropriate, I try to use my allergies as a talk-point; a way to make small talk with people I’ve just met. If I freely talk about having allergies, I stop feeling embarrassed and people don’t have a chance to sound ignorant.
 
Living with food allergies will always be a challenge, but it definitely isn’t something to be embarrassed about.

Friday, 10 February 2017

Taylor  talks to us about the challenges Valentine’s Day can bring if you have multiple severe allergies.

2017 Year of the Adult

“My name is Taylor, I'm 23 years old, live in Greenwich, London. I have chronic spontaneous urticaria angioedema anaphylaxis.

I've been with my boyfriend over four years now and suffer with severe allergies to lots of things.   I'm allergic to plants, trees and grass.  Especially flowers! I'm allergic to nuts and chocolate and many other food allergens.  My boyfriend and I have to adapt and work round my allergies. I'm also allergic to alcohol, so I am allergic to most things to do with Valentine's Day.

My boyfriend has put me into anaphylaxis  a number of times from kissing me after he had ate something earlier that day that I'm allergic to. 

Note from the Anaphylaxis Campaign, please read our top tips for staying safe whilst kissing :-).

However we still have lots of fun, I'll prepare all my own food beforehand if we're going away for a day trip or for a night away. We've gone to the zoo a lot or to farms as I love animals and we've gone skiing. If we have gone to hotel, my boyfriend will eat what I can physically be around and then he will brush his teeth and disinfect himself not to cause any cross contamination. We'll go for bike rides or swimming and we love the fair or anything historic. We go for a lot of nights away in hotels across the UK, (I'll prepare and pack my own food). I couldn't really imagine anything different as we have to be so careful and plan ahead it's become the norm.

We love each other's company and live a very happy, loving and fun love life. It's just a bit more tailored and carefully planned than your average relationship.”


If you would like to share your story of living with severe allergies as a young adult please drop an email to press@anaphylaxis.org.uk.

Wednesday, 30 November 2016

Meghan Gayler

Fifteen year old Meghan Gayler only discovered her allergy to peanuts last year after going into anaphylactic shock from eating a Chinese with friends. Here, she describes how it felt.

Most people find out they have an allergy in the first couple of years of their life, however I discovered mine last summer at the age of 15.

It began last summer during our end of Mock exam celebrations with friends. We had decided to order a Chinese to enjoy all together but it certainly wasn't enjoyable after a couple of minutes into the food. I decided to try Satay sauce as I had never tried it before and wanted to see if I’d like it.

I put a piece of Chicken covered in Satay sauce onto my plate and licked my finger as I got sauce on my finger. This was the first sign. My lips were tingling like mad and my throat and mouth were filled with an itching sensation that even water couldn't take away. I decided to carry on eating the food, but within an hour, full anaphylaxis had taken its toll. I was experiencing wheezing, hives, watery eyes, difficulty breathing and felt very anxious, something I had never experienced before. Soon after this, the breathing got worse and an ambulance was called. Nothing had ever happened like this before hence I had no EpiPen on hand. After 2 shots of adrenaline and a nebuliser helping with the breathing, the reaction finally calmed down.

After going through the awful experience of anaphylactic shock last year I have now discovered through allergy testing that I suffer from a severe allergy to peanuts that I had unbelievably coped with for 15 years. I now understand how serious allergies need to be taken as I’d hate for more people to go through the horrible experience of anaphylaxis. It has changed the life I live as going out to eat can feel as if the waiters think I’m being awkward but I’m certain it wouldn't be a pretty sight if they misunderstood. Even if I can't enjoy some of my favourite snacks anymore, better safe than sorry!

Jennie Marsden

Jennie Marsden describes her first allergic reaction and the difficulties she has faced as an allergy sufferer.

Lashings of smooth peanut butter upon buttered white bread used to be my favourite teatime treat, one that I regularly enjoyed until out of the blue, aged sixteen, I developed an allergy to all nuts and sesame seeds. My allergy was triggered by eating four cashew nuts and provoked swelling, hives, a drop in blood pressure and debilitating lethargy.

Twelve years later, my allergy has impacted many aspects of my life; learning to live on my own at University, eating out with friends and travelling abroad all proved tricky but not impossible; I have learnt not to risk Indian, Chinese and Thai restaurants, to check everything that I ingest or put on my skin. Checking ingredient lists, googling Latin translations and gently giving back nut filled gifts from my students. Nothing goes unchecked.

People presume that issues will only arise while ingesting something but shampoos, body creams and hair sprays often use nourishing but toxic nutty ingredients. Argan (Argania spinosa) has become the recent miracle oil and is now used in many mascara brands. I am still to find a lipstick that does not contain shea butter.

Visiting a foreign bathroom is now stressful and means sniffing the toilet roll to try and detect whether it has shea oil on it and then reading the ingredients of the soap bottle to check whether it’s safe. I recently bought a pair of nude tights to find that they had been infused with shea butter and have nearly drunk a can of cola with peanut oil in it. There is also a hazard in my job as a music teacher after I was informed by a piano tuner that he often uses walnut oil to condition the piano keys.

Social niceties pose problems too; I dread the kiss on the cheek greeting and then having to go through it all again when saying goodbye; kisses from family members who know about my allergy but forget that they have had a pesto sandwich for lunch then means an hour of worry when my cheek erupts in a nasty rash. I’m very lucky that my family are so understanding but it is exhausting having to remind people.

The hardest thing to come to terms with is the sense of ignorance that others have around you; a member of staff and an old ‘friend’ regularly roll her eyes at me if my allergy is mentioned; it really upsets me as I would like nothing better than to live allergy-free and not have to carry adrenaline; reactions like that make me feel embarrassed and anxious about my condition; careless and mocking attitudes will make taking risks more likely and it takes a lot of courage to stand up for yourself and appear ‘different’.

Unfortunately, I have been disappointed with the support available to me as an adult; reacting at 16 meant that I was not a priority and as a result of little support and a lack of reliable information, I suffered terribly with panic attacks and refused to eat out for many years. When enquiring about shea nuts, my GP told me to avoid them and yet other national bodies online have said that shea shouldn’t provoke a reaction; I had a negative blood test against coconut but was told by my GP that it wasn’t a reliable test so I should avoid it anyway and he couldn’t refer me to an allergy clinic ‘because they didn’t do that anymore.’

Twelve years on, I have learnt that only I can make life easier for myself; I took an aromatherapy course to learn more about cosmetic ingredients and now use essential oils to create my own toiletries and cosmetics. The fact that I can’t eat a lot of chocolate keeps me slim and my sugar levels down and because of my allergy; I am described as ‘special’ when I eat out. What more could a girl possibly want.